Archive for the 'Friedreich’s Ataxia' Category

Apr
20
2008
Walking

At 19, I was diagnosed with Friedreich’s Ataxia. We’d been married for about two months and I was about that pregnant. I could walk, without help even. Stairs were more difficult and I needed a hand or, at least, a handrail. At our wedding, we stood on two steps that we then climbed to light the unity candle. I held … Read More »

Apr
4
2008
Gotta love fatigue…

It just sneaks up from no where some times. Everything is going well and life is productive, then suddenly a day comes when there’s not much more than basic living that I can manage. Frustrating and disappointing when it impacts goals and plans, but it is what it is.… Read More »

Mar
27
2008
Exercise?

Sometimes it seems the day blows by so fast and I was barely able to keep up with the absolute necessities. I stayed up late Tues night working on my website. Last night, while dh watched Blood Diamond- which turned out to be a really good movie – I typed up my youngest daughter’s poems. We’re having two copies bound … Read More »